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Camran Nezhat MD among Peter Husslein MD, Heinz Koelbl MD, Christian Garter MD and Kazem Nouri MD from the Department of Ob/Gyn University of Vienna, one of the most prestigious Universities in the World, have been at the helm of Philanthropic causes. They have celebrated Worldwide Endometriosis March (EndoMarch) and Worldwide
Endometriosis Day from its inception. Austria and Austrian women with Endometriosis are very active in the cause to raise awareness.
EndoMarch Austria Team celebrated the occasion on Thursday March 22 in Vienna.
Yassi Miremadi is a philanthropist and activist for women causes. She has been organizing Worldwide Endomarch Austria Team successfully every year.
Azzie Nezhat MD and Yassi Miremadi with their daughters celebrate Worldwide Endomarch Austria on Thursday March 22nd.
Pain and infertility, two frightening words usually associated with Endometriosis, an abnormal growth of endometrial cells outside of the uterus. This chronic illness affects approximately 1 in 10 women and to date, even more concerning, the exact cause of it has not been identified. There is no cure.
With March being Endometriosis Awareness Month, gatherings across the globe look to shine a light on this illness during the 5th Annual Worldwide EndoMarch. Ottawa is part of the campaign to break the stigma and silence come March 24th with a group meeting at the intersection of York and Dalhousie in the ByWard at 12:30 PM to head towards an end rally on Parliament Hill.
“No woman should be shy to speak up about period pain, because sometimes it is more than just a painful period,” says Carine Boustani, team leader of the Worldwide EndoMarch (Ottawa). “This march is an active step. We need to improve our knowledge about the widespread medical conditions that are still taboo to talk about openly in today’s world.”
The catalyst for the first EndoMarch was the article Endometriosis: Ancient Disease, Ancient Treatments by Drs. Camran, Farr and Ceana Nezhat. Published in 2012, the piece uncovered evidence that many past cases of the now discredited psychological disorder hysteria may very well have been endometriosis. The family also had a very personal reason to research what would eventual become the report after their mother became ill and need much medical care. They have been dedicated to women’s health issues for decades. Looking to address needs they feel are going unmet, the family made it a mission to develop ways to better diagnose and treat endometriosis.
Their mission statement reads that the EndoMarch was founded as an “urgent call to action to improve the quality of medical care for millions of women and girls who suffer from endometriosis, an incurable, whole-body chronic disease that can potentially cause system-wide crippling pain, organ damage, infertility, and other severe medical consequences if left inadequately treated.”
The family and others behind the cause know much more needs to be done, especially when considering that statistic that an agency such as the National Institutes of Health (NIH) spends less than $1 on endometriosis per capita. The group have broken down what they hope to accomplish into a simple mandate: Empower, Educate and Effect Change. In short, they feel uniting women and their supporters will raise awareness to their efforts, help train medical staff to improve treatment while they are simultaneously working with governments and congress to allocate more funding on much needed research. They are also seeking to improve early health screenings among girls and young women in school.
“As team leader of the Worldwide EndoMarch in Ottawa, and as an Endo fighter myself, I encourage you to join and take part in this event to help shed light on Endometriosis and help end the silence to the suffering of 1 in 10 women,” says Boustani.
“The statistics are real and so is the pain. There still is no cure for Endometriosis, it is one of the leading causes of infertility and it takes an average of 7 to 10 doctors before getting diagnosed. Join us and let us make a difference.”
Organizers are requesting those attending on the 24th wear yellow in support of the cause. More information on Ottawa’s Worldwide EndoMarch can be found on the group’s Facebook page. You can register now online here.
By: Andre Gagne
Worldwide Endomarch Head Quarters is proud to announce the program for 2018 Vienna Austria. The Austrian Team of Worldwide Endomarch has put together an outstanding program. We invite all of you and especially those in the neighboring cities and Countries to attend this outstanding program and visit the beautiful city of Vienna. You will have the most wonderful time.
An interview with Drs Nezhat
By Christine Kilgore published at Obgyn News and Obgyn Management.
The American College of Obstetricians and Gynecologists (ACOG), the nation’s leading group of physicians providing health care for women, is a proud endorser of the Worldwide Endometriosis March (EndoMarch). While I am honored to be the recipient of the EndoMarch’s Endo Hero of the Year award, I know that we. as ob-gyns, must do our part to raise awareness about the condition with patients, strive to improve our understanding of the disease and ensure more timely and accurate diagnoses.
The numbers say it all:
Raising awareness about endometriosis and increasing its timely diagnosis improves women’s lives. Careful listening and discussion are integral to early detection, as many common symptoms are sometimes not always obvious, such as chronic lower back pain and intestinal problems like diarrhea, constipation, bloating and nausea.
While symptoms may range in terms of severity, nearly all of them take a physical toll on a patient’s day-to-day life—from increasing tiredness to limiting her physical capabilities. As with all diseases and conditions, ACOG strongly advocates for an evidence-based approach to management of the chronic pain and other manifestations of endometriosis.
We also understand the pressing need for a non-invasive diagnostic test and improved treatments for those who suffer chronic pain related to endometriosis. ACOG calls for more research that supports a wider range of treatments. ACOG recognizes the invaluable role that patient advocates play in the public conversation about this debilitating disease. It’s time for ob-gyns to talk with patients more regularly about endometriosis, and ensure more women are getting the care and support they deserve.
– Hal C. Lawrence, M.D., ACOG Executive Vice President and CEO